Obliteride has always been bitter sweet for me, and this year no less than ever. In years past in which I rode in Obliteride there was hope - hope that my little girl, Allistaire, might somehow defy the brutal odds at work against her. In her four and a half year battle against Acute Myeloid Leukemia, she overcame so many obstacles including over 500 inpatient days at Seattle Children's Hospital, 25 rounds of intense chemotherapy, two bone marrow transplants, genetically modified T-cells and severe heart failure. In the end, it was not her heart, kidneys, liver or lungs that failed, it was the insatiable appetite of her beastly cancer that in a brutal two week period took a little girl who went to the play ground multiple times a day to mute from the cancer eating away at her brain and finally to her last ragged breath on April 30th 2016.
Allistaire never knew life without cancer. At just 21 months old, her whole life became consumed by cancer. On March 6th of this year she would have been 8. I miss her with all that is with in me. She was a bright, giddy wildcat of a girl who was simultaneously so gentle, loving and compassionate. I wish you could have known her...I so desperately wish I could still hear her voice and see her bright blue eyes. Cancer has ravaged so much in my life and the life of my family. It has stolen so much...
Allistaire is just one little girl, just one life among so, so many that have been lost to cancer. The way forward is daunting. The complexity of cancer - even amongst patients with the same disease - is staggering. It is a wily foe, ever changing. Allistaire received that absolute best cancer treatment planet earth and human kind has to offer. We are indebted to the incredible doctors, nurses and support staff at Seattle Children's Hospital and at Fred Hutchinson Cancer Research Center where so many of the clinical trials made accessible to her gave her another fighting chance.
The total cost of Allistaire's cancer treatment was $10,000,000. You read that right: 10 million dollars. And it still wasn't enough. We have got to put our money up front into research. Honestly, Allistaire's cancer treatment was like standing my little toddler girl against the wall and spraying her with bullets from a machine gun - hoping enough bullets would intersect with the cancer to take it out with out killing the rest of her. We need to fund genomic sequencing of patient's disease at the beginning of treatment. We must empower researchers to get ahead of the disease by understanding its backbone - its genetic code and what drives the disease. We cannot keep relying on indiscriminate carpet bombing of bodies. Immunotherapy is one enormous and amazing body of research that will undoubtedly be part of the answer of curing cancer.
But what do I know? I know that the researchers at Fred Hutchinson Cancer Research are some of the best brains on the planet. Equally important, they are some of the most driven people I know and the source of that drive is absolute and genuine care for their patients. Their patients are not medical record numbers. Their patients are not lab values and pathology slides. Their patients are real people with whom they have cried and laughed and cheered on and had to deliver the most painful news. One of the most incredible upsides of Allistaire's cancer journey, is the privilege I have had of being able to come to know some of the most amazing doctors and researchers in the world who have wept with me over Allistaire.
There are few endeavors more worthy of your money - that hard earned money you went to work for and slaved over that computer or at the counter or in the field or in the fire - yes - your money that you worked hard for - I implore you to consider giving some of it away as an actual tangible investment in the lives of people like yourself, like your own children, like your friends and family that will one day have to face that beast cancer. Let's help the researchers at Fred Hutch craft weapons that are precise and effective - and let's help them do it a whole lot faster!
Not only can you give your cash - you're also heartily welcome to join our Team Baldy Tops either as a rider or a volunteer. We'd love to have you join us. We'll be the one's in the unicorn helmet covers riding fast and riding slow - it doesn't matter - we're doing it because our loves have been and are being threatened. We want to actually do something about it. Join us!
Much love to you all and can't wait to see you in orange and spandex!!!
Jai Kieron Rene Anderson (I changed my name - tucking a wee bit of Allistaire Kieron Anderson right inside myself as long as I live)